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Forty years later, in 2017, life expectancy in the US has grown with identification of patients with newborn screening programs, prophylactic penicillin from birth to age six, the advent of the pneumococcal vaccine, transcranial doppler ultrasound screening with transfusions to prevent stroke, chest syndrome recognition and prevention, comprehensive pediatric care and hydroxyurea. Jude Children’s Research Hospital in Memphis TN had leukemia and sickle cell disease. Jude doctor performed a bone marrow transplant using marrow donated from the patient’s brother.
TV and Billboard adverts, Banners, Flyers, Posters, Presentations using Projector and Screen and ‘T’- shirts were all used to intensify the advocacy.This may reflect a lack of access to high-quality comprehensive care for adults with SCD in the US. Gifty Tina Naa Ayeley Mensah Corresponding Author: Email: [email protected] 2017 two notable advances happened: In July the FDA approved Endari or L-glutamine oral powder to Emmaus Medical Inc for use as a preventative in sickle cell patients 5 years and older. Website Sickle Cell Disease (SCD) is the most common serious genetic disease in Africa.The Counseling Units started running before official opening of clinics which was done at the end of the project.All official opening ceremonies were covered by press. Advocacy groups made up of patients, parents and people with interest in SCD were established in all three northern regions.